Tips for Carers

Recognising Your Role as a Carer

Caring for someone with MS or Parkinson’s can bring about a mix of feelings, from being rewarding to being deeply challenging.

Acknowledging that you are a carer is one of the most important steps you can take to access the help and understanding you deserve.

Recognising yourself as a carer allows others to recognise you too — for the vital work you do behind closed doors every day. Across New Zealand, thousands of people provide care to loved ones living with neurological conditions. You are not alone, and there is support available to help you continue caring with confidence and balance.

 

Finding Balance: Caring Without Burning Out

It’s natural to want to do everything for the person you care for, but taking on too much can lead to exhaustion and burnout.

If your loved one is still able to carry out certain tasks, encourage them to do what they can. Supporting their independence not only helps maintain their confidence and dignity, but also eases some of the daily load on you.

 

A few practical ways to look after yourself:

  • Take short breaks when you can — even 10 minutes of rest can help.
  • Stay connected with friends, family, or support groups.
  • Eat well, get enough sleep, and keep active when possible.
  • Be kind to yourself — caring is demanding work, and it’s okay to feel tired or overwhelmed.

 

Knowing When to Ask for Help

One of the hardest things to do as a carer is to recognise when you need support yourself. Many people wait until they reach a breaking point before reaching out — but help is most effective when sought early.

Attending support group meetings or talking to others who understand your journey can provide immense relief and perspective.
You’ll find comfort in shared stories and gain practical advice from people who have been there too.

 

Connecting with Support Groups and Services

You don’t have to face the challenges of caring alone. Joining a carers’ support group or connecting with support organisations can make a big difference. Whether you need emotional support, practical advice, or just someone who understands, there’s help available near you.

 

Helpful organisations and resources:

  • Carers NZ – Provides information, advice, and wellbeing for family carers. You can also subscribe to their Family Care magazine.
    www.carers.net.nz
  • Healthify NZ (formerly Health Navigator NZ) – Reliable information on healthcare, medications, and community services.
    www.healthify.nz
  • MyMSD – For financial and practical support through Work and Income.
    www.workandincome.govt.nz
  • Eldernet – A directory of home support, respite, and residential care services across NZ.
    www.eldernet.co.nz

 

Practical Support and Financial Assistance

Caring for someone full-time can affect your finances and lifestyle. Fortunately, there are services and subsidies to help ease the load:

  • Carer Support Subsidy – Helps cover the cost of respite or short breaks for carers.
  • Respite Care – Short-term care options that allow you to rest or attend to your own needs. Contact your GP or family doctor to support you with a referral for a needs assessment.
  • Disability Allowance – Helps with the cost of ongoing care or medical supplies.
  • Mobility Parking Permit – Available through CCS Disability Action for easier access to facilities.
  • Home Help and Transport Services – May be available through your local DHB or support organisation.

Do note that there is an eligibility criteria to meet for the above support. You can find more information on these options through Work and Income NZ and Ministry of Health.

 

Caring in the Long Term

As MS or Parkinson’s progresses, your caring role may change. Planning ahead can help reduce uncertainty and make transitions smoother.

  • Work closely with healthcare professionals – ask questions and stay informed about care plans.
  • Adapt your home environment – small modifications can make daily life easier for everyone. If you find daily tasks at home challenging, contact your GP or family doctor so that they can arrange a referral to complete an in-home assessment.
  • Keep learning – attend workshops, webinars, or information sessions offered by MS & Parkinson’s Canterbury or other support organisations.

Remember, good care starts with good communication — between you, your loved one, and the healthcare team.

 

Quick Links and Helplines

  • MS & Parkinson’s Canterbury: 03 366 2857
  • Carers NZ Helpline: 0800 777 797
  • Healthline: 0800 611 116 (for medical advice)
  • Need to talk? Free call or text 1737 to reach a trained counsellor anytime